In August 2017 Al DeCesaris took on an exciting endeavor in honor of his niece Jenna and all those living with Sturge-Weber Syndrome (SWS). His 31-day, 555-mile Hiking Camino de Santiago For a Cure journey of hope began in St. Jean Pied-de-Port, France at the base of the Pyrenees Mountains and had him hiking the historic Camino de Santiago (Way of St. James) across the Iberian Peninsula to the Cathedral of Santiago de Compostela in Galicia, Spain before reaching his final destination of Cape Finisterre overlooking the Atlantic Ocean.
Each day of Al’s journey of hope across Spain was dedicated to a different person living with SWS. Through his efforts he’s creating awareness about this devastating disorder in both the U.S. and Spain and raising funds for SWS research to help further the efforts to find a cure.
You can track Al’s hike across Spain on our interactive map. Each day of his journey of hope was dedicated to a different person living with Sturge-Weber Syndrome. Read their heartfelt stories, view their photos, and share Al’s incredible journey.
August 1, 2017 through August 31, 2017
From St. Jean Pied-de-Port, France to Cape Finisterre, Spain
Share Al’s journey with friends and family and help raise awareness about Sturge-Weber Syndrome.