Events

Crossing America For A Cure

Organizer: Al DeCesaris

Crossing America For A Cure   In 2013, Al DeCesaris set out on a solo coast-to-coast bike ride in honor of his niece Jenna, who was born with Sturge-Weber Syndrome, a rare neurological disorder. Pedaling on average 75 miles per day, he rode from Santa Monica, California through 14 states and...

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Running The Coast For A Cure

Organizer: Al DeCesaris

Running The Coast For A Cure   In 2014, Al DeCesaris took on another challenging endeavor, this time on foot. Without a support team and with no marathon experience, Al covered on average 22.5 miles per day for three consecutive months from Lubec, Maine down the entire East Coast to...

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Bands on the Bay

Organizer: CelebrateHopeadmin

Bands on the Bay is an event created by the DeCesaris and Heck families following the birth of Jenna Heck, who was diagnosed with a congenital neurological disorder called Sturge-Weber Syndrome (SWS). The event raises money for the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute, a state-of-the-art medical facility...

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Hiking Camino de Santiago For A Cure

Organizer: CelebrateHopeadmin

In August 2017 Al DeCesaris took on an exciting endeavor in honor of his niece Jenna and all those living with Sturge-Weber Syndrome (SWS). His 31-day, 555-mile Hiking Camino de Santiago For a Cure journey of hope began in St. Jean Pied-de-Port, France at the base of the Pyrenees Mountains...

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Jeremy’s Pile of Miles

Organizer: CelebrateHopeadmin

Jeremy's Pile of Miles Stunning trail races at Smith Rock State Park (May 12, 2018)...

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