News

Sturge-Weber Syndrome Patient Gives Back

Posted Thursday October 19, 2017 by Al DeCesaris

Sturge-Weber Syndrome patient Paul Siegel gives back by raising funds for Sturge-Weber research On October 19, 2017, Celebrate Hope Foundation, in partnership with Sturge-Weber Syndrome patient Paul Siegel, hosted a...

Read More »

Mom Honors Daughter’s Memory In Beautiful Way

Posted Sunday October 01, 2017 by CelebrateHopeadmin

Mom honors daughter’s memory in beautiful way by raising funds for Sturge-Weber Syndrome research Recently Al DeCesaris was contacted by Rosanna, the mother of Vida, a Sturge-Weber Syndrome (SWS) child...

Read More »

SWS Reading Program at Kennedy Krieger

Posted Thursday March 30, 2017 by CelebrateHopeadmin

Sturge-Weber Syndrome Summer Reading and Medical Program at the Kennedy Krieger Institute This new program is designed to provide individualized reading assessments and neurological assessments for children with Sturge-Weber Syndrome...

Read More »