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Our Cause
Our Cause

We are a nonprofit charitable organization dedicated to improving the quality of life of those affected by Sturge-Weber syndrome and port-wine birthmarks. Our mission is to create awareness and raise funds for Sturge-Weber research and further the efforts to find a cure. 

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Our News
Our News

In 2013, the cause of Sturge-Weber syndrome was discovered! Now critical research is being done to help people with SWS live healthy and productive lives. Celebrate Hope Foundation is proud to support Dr. Anne Comi of Kennedy Krieger Institute in achieving these goals.


Our Community
Our Community

We at the Celebrate Hope Foundation are here to support individuals and families affected by Sturge-Weber syndrome. As a family resource, please feel free to contact us with any questions you have or to find out how you can become a part of our support community and family.

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Latest News

2019 Bands on the Bay

Posted Tuesday, August 6, 2019 by CelebrateHopeadmin

2019 Bands on the Bay is back! Join us at our waterfront venue for music, food and friends. Let's Oktoberfest...

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2019 Oktoberfest

Grand Canyon Rim-to-Rim Hike for Charity

Posted Monday, June 10, 2019 by CelebrateHopeadmin

On June 15th, brothers, Al and Joe DeCesaris, will hike 23.9 miles from the Grand Canyon's north rim to south...

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Bands on the Bay is BACK!

Posted Monday, August 13, 2018 by CelebrateHopeadmin

Celebrate Hope Foundation is excited to bring back Bands on the Bay at an exciting new water front venue. We...

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The Cause of Sturge-Weber syndrome has been Discovered!

According to Anne Comi, M.D., co-senior author of the research that produced the groundbreaking discovery, Sturge-Weber Syndrome and port-wine birthmarks are caused by a somatic activating mutation in the GNAQ gene which occurs during early pregnancy. Although more research must be done, the study, published (May ’13) in the New England Journal of Medicine, brings researchers closer than ever to a cure.

We need your help to reach our 2019 fundraising goal of $50,000. Make a donation today!
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