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Our Cause
Our Cause

We are a nonprofit charitable organization dedicated to improving the quality of life of those affected by Sturge-Weber syndrome and port-wine birthmarks. Our mission is to create awareness and raise funds for Sturge-Weber research and further the efforts to find a cure. 

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Our News
Our News

In 2013, the cause of Sturge-Weber syndrome was discovered! Now critical research is being done to help people with SWS live healthy and productive lives. Celebrate Hope Foundation is proud to support Dr. Anne Comi of Kennedy Krieger Institute in achieving these goals.

News

Our Community
Our Community

We at the Celebrate Hope Foundation are here to support individuals and families affected by Sturge-Weber syndrome. As a family resource, please feel free to contact us with any questions you have or to find out how you can become a part of our support community and family.

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Latest News

Bands on the Bay is BACK!

Posted Monday, August 13, 2018 by CelebrateHopeadmin

Celebrate Hope Foundation is excited to bring back Bands on the Bay at an exciting new water front venue. We...

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Sturge-Weber Syndrome Patient Gives Back

Posted Thursday, October 19, 2017 by Al DeCesaris

Sturge-Weber Syndrome patient Paul Siegel gives back by raising funds for Sturge-Weber research On October 19, 2017, Celebrate Hope Foundation,...

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Mom Honors Daughter’s Memory In Beautiful Way

Posted Sunday, October 1, 2017 by CelebrateHopeadmin

Mom honors daughter’s memory in beautiful way by raising funds for Sturge-Weber Syndrome research Recently Al DeCesaris was contacted by...

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The Cause of Sturge-Weber syndrome has been Discovered!

GROUNDBREAKING DISCOVERY OF THE CAUSE OF SWS GIVES PATIENTS HOPE:
According to Anne Comi, M.D., co-senior author of the research that produced the groundbreaking discovery, Sturge-Weber Syndrome and port-wine birthmarks are caused by a somatic activating mutation in the GNAQ gene which occurs during early pregnancy. Although more research must be done, the study, published (May ’13) in the New England Journal of Medicine, brings researchers closer than ever to a cure.

We need your help to reach our 2018 BANDS ON THE BAY fundraising goal of $50,000. Make a donation today!
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