In August, Al DeCesaris took on an exciting endeavor in honor of his niece Jenna to raise awareness and funds for Sturge-Weber Syndrome (SWS) research. His 31-day, 555-mile ‘Hiking Camino de Santiago For A Cure’ journey began in St. Jean Pied-de-Port, France at the base of the Pyrenees Mountains and had him hiking the historic Camino de Santiago across the Iberian Peninsula to the Cathedral of Santiago de Compostela in Galicia, Spain before reaching his final destination of Cape Finesterre overlooking the Atlantic Ocean. Each day of Al’s journey of hope across Spain was dedicated to a different person living with SWS, and led to a greater understanding of SWS, engendered acceptance of those living with the disorder, and raised critical funds for medical research to further the efforts to find a cure.
Join the fight against Sturge-Weber Syndrome by making a tax-deductible donation to Celebrate Hope Foundation. Funds raised from HIKING CAMINO DE SANTIAGO FOR A CURE support medical research being conducted at the Hunter Nelson Sturge-Weber Syndrome Center at Kennedy Krieger Institute.
